Published on: 10/04/2025
This news was posted by Oregon Today News
Description
Dear Annie: My husband and I have a large family, and earlier this year we welcomed our newest baby, “Izzy.” The pregnancy went smoothly, and everyone thought she was healthy until about half a week after coming home, when she began showing concerning symptoms. We’ve been working closely with her doctor ever since and recently learned she has a rare genetic condition. It’s incurable, causes severe symptoms and is usually fatal in childhood.
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